Devyn remains a puzzle to us and to the doctors she's seen. I got her into the pediatrician last week and here's where we're at.
At her appointment with the pediatrican last week Thursday she weighed in at 13lb. 7oz. and 26". She pretty much hasn't grown in length and has only gained a little under a pound in 2 months. They consider this failure to thrive. It's a hard label for me to accept. Although I haven't done anything to make it happen it's hard to hear the word failure attached to your child. I was thinking that maybe I wasn't eating enough or drinking enough and my milk wasn't high enough in calories. Our pediatrician was asking a lot of questions about her eating habits, pooping, spitting up and how things went at the allergist. I told her he thought she could be lactose intolerant. She didn't think so. She said she would be unable to breastfeed if she were truly lactose intolerant. So we were back to square one. She said the first thing to do was a urinalysis to rule out a chronic urinary tract infections. She put a bag on her and we collected a sample. We brought it in and the labs came back that her pH levels were a bit high and she had a slightly elevated level of esterase. Obviously we had no idea what that meant. She said that was a sign that she may have a urinary tract infection, but that the lab may have left the urine out too long and caused false results. They didn't even send her the results. I was very frustrated because they assured me they would fax them to her right away. They didn't send them at all! I also need to call about her blood test results from the allergy testing. I'm hoping to get those today.
Our pediatrican asked if I could collect another sample and bring it directly to her office. So, this morning I put my nurse hat on and got Devyn all set up with another bag to collect the sample. I brought her right to the doctor. Of course we got there and there was nothing in the bag. We sat in a room for about half an hour before she finally went and I was able to hand over her sample. It showed about the same thing, just a little bit lower levels. So it was sent off to be anazlyed and now we wait for those results. At this point it doesn't look like a UTI, but we'll have to wait and see.
The pediatrician also agreed with the allergist that this warrants a visit to a GI dr. to see what they think. I called and got her an appointment next Tuesday. We're seeing a dr. at the University of Chicago, because it's been such a great place for us. We were walking out of the hospital after Devyn's allergy appointment last week and realized we've been going to U of C for 3 years now. It's amazing how quickly time has past and how many great doctors have helped us in those 3 years. Now we're on another journey to start ruling things out and try to figure out why Devyn just doesn't seem to be growing. I don't know what to hope for. I don't know if I hope they find something or if they find nothing. The time between appointments leaves me anxious. I try not to worry or overthink it, because it does no good. So, please pray for Devyn and pray for us. I'm hopeful that the GI dr will have some ideas for us next week, but until then we just have to be patient.
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