Devyn update

On Tuesday Devyn had her visit to the GI dr at the University of Chicago.  It was a long day.  We met with the dr who discussed many different possibilities.  She suspected in part that she needed an increase in calories.  She also feels that a milk protein allergy is partly to blame.  She is allergic to one of the proteins found in milk and she will hopefully outgrow it by the time she turns one.  That would be so wonderful! 

She also wanted to do some further testing to rule out things like kidney disease and a fat malabsorption disorder.  I had to bring in a stool sample for testing.  In the mean time she called and asked us to bring in another urine sample because some of the bloodwork was concerning.  She consulted with a kidney dr after getting the results of the blood test and he agreed that further testing was necessary.  I brought in yet another urine sample (this was the 3rd).  I got the call today that she thinks the urine sample does indicate kidney disease.  She didn't want to make too many assumptions at this point, but she thinks that's what it points to.  She sent a message to the kidney dr and we should hear back from her early next week.  We may need to follow-up with a kidney specialist at this point.  I think we may finally be getting down to the bottom of this.

I also met with a nutritionist on Tuesday.  I'm sorry if you are a nutritionist, but I'm not their biggest fan.  I think they tend to be very one size fits all.  She pretty much told me that Devyn just isn't eating enough.  So, I guess I'm supposed to shove food down her throat?  She also suggested introducing some formula into her diet to bump up her calories.  So, I'm giving her 2 bottles that are a breastmilk/formula mix.  I'm introducing more solid foods (which I was already in the process of doing) too.  She's also slightly anemic, so they want her to take an iron supplement.  I'm always right on the border of anemia and was anemic during both pregnancies.  The nutrionist made it seem like this was the only issue and I knew that there was more going on.  Whatever.  I'll take her suggestions and see if it helps her.

All in all I feel like we may finally be getting to the bottom of this.  I'm so thankful that our pediatrician and allergist encouraged us to pursue this.  Hopefully by this time next week we'll know more and be able to find some solutions.